Children are sometimes stronger than all adults. Such is the story of Jule. Jule is 5 years old but she can barely walk, she feels pain all over her brain but she still smiles and will play like all the other children. A genetic defect makes him weaker every day.
Jule from Hamburg can only walk a few meters, then her legs grow. She can’t even wash her teeth by herself, she loses weight every day, but she still has the power to laugh.
There are only 60 children with SMARD worldwide. There is no cure, therapy or cure for this disease. One day she will be so weak that I won’t be able to breathe.
I know what will happen to me, I know. But if I cry, I won’t be happy at all, I’ll laugh to be happy for mom and dad as long as I live, you too live laughing. I know I have a little time left, I’m going to laugh and I want to play.